“Sometimes, real superheroes live in the hearts of small children fighting big battles”
Long but worthy cause and post.
Ava’s Little Heroes is an annual event at Animal Adventure, inspired by the support offered to park owners Jordan and Colleen Patch, for their daughter Ava, upon complications resulting from brain surgery at the age of three months old. An eleven-day intensive care stay, plagued by uncontrollable seizures and fevers, yielded new diagnosis and many unanswered questions. During that time, the support from around the community flooded the hearts of the Patches. Able to absorb the medical and travel expenses, they were inspired to pay it forward, and use this positive energy for others in need.
The Ava’s Little Heroes event, in its first year, raised over $10,000 for a local family, with a very similar story – young Brayden, encountering unexpected seizures and medical emergencies soon after birth. Through community support, donations, sponsorship, raffles, and participation – the event was a success and is expected to be again. The selected recipients of this year's funds are listed in the link below; 5 strong fighters.
Unable to attend? Here is your link to support our Little Fighters in their BIG battles.
Note from the Patches:
Ava continues to fight a rare form of Epilepsy, Aicardi Syndrome. She experiences daily seizures but continues to defy odds and will always be our little Superhero. We appreciate your support for this event in her name.
Ava’s Little Heroes of 2017
At the young age of one, Ruby has encountered a multitude of health concerns. Residing with her family in a small town in NY, off Interstate 88, they find themselves returning to Albany almost weekly for continued treatments and check-ups. Born prematurely, Ruby immediately underwent surgery to correct a heart defect. She soon after encountered further issues with her esophagus and digestive system. This young family, with their first born, have been through a lot and we certainly can relate.
Her battle is far from over and we wish to support her to alleviate travel and medical expenses.
An inoperable brain tumor (DIPG) has brought a family from Fairport, NY to Germany and back, seeking answers with experimental treatments, in addition to her continued care at STRONG Memorial Hospital. The family, of four-year-old Zoey, has endured mounting expenses in the search to find treatment and answers for a diagnosis that would leave most feeling helpless. Every little hero has their parents fighting right behind them. We wish to assist Zoey’s family so they need not think twice about treatment because of expense.
Gideon, now 3 years old, has been nicknamed “Superman” by his family and supporters! Given a slim chance of survival post birth, he has defied all odds. Gideon’s fight with Polycystic Kidney Disease has had him fighting his short life to become strong enough for a kidney transplant. On July 13, that became a reality. The donor, his Dad. Their battle has led to mounting expenses, and with donor dad out of work due to the surgery, this family of five needs our help! We wish to assist Gideon, his brothers, mom and dad – get pass this most recent surgery and look towards the future.
A true fighter, Phatar, now eleven years old, has battled with Rhabdomyosarcoma (a form of cancer). Young Phatar is terminal. After defeating the cancer once, it did return in September of 2016. The family spends most of their time in Syracuse for treatment, but call Johnson City, NY home. We wish to assist his mother during this difficult time by alleviating traveling expenses between the Binghamton area and Syracuse.
Mackenzie has been in a battle against inflammatory bowel disease from an early age. At age seven, she lost her colon to the fight. From Hancock, NY – Makenzie and mom travel to the Children’s Hospital of Philadelphia at least monthly for continued treatment and checkups. We wish to alleviate travel and medical expenses for this strong little lady!
This has been started at the request of supporters unable to attend. All funds raised, below or above our goal, will be allocated from the Ava's Little Heroes account to the families of supported little heroes. View the links below to see how funds are raised, and last year's successful event.
Support here : Ava’s Little Heroes of 2017
Thank you for your support
Sherry DeSebasco Truly inspiring. I went to the internet to better understand this syndrome. Thanks for sharing that, and continued love and support for the Patch family and foundation. We love you a lot
Mindy Ferguson Klehr This is such a wonderful post! God Bless all of you and prayers for all the families!
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